Meet the Remodulin PEER Mentors

Remodulin PEER Mentors are Remodulin patients who have volunteered their time to help people like you. If you are new or are considering taking Remodulin and are seeking support from someone who has been down a similar path, they are here to share their experiences living with PAH, give you practical lifestyle tips, and offer support in your own journey. Below, you'll meet some of the Remodulin PEER Mentors who are standing by to help you. We encourage you to connect one-on-one with a Remodulin PEER Mentor today. Simply call 1-866-505-7337 or visit peernetwork.net to connect with a mentor.

Enroll with the PEER Network today, and request to start connecting with one of these mentors.

Patient: Camille

Born: 1989

Location: Walker, MI

Diagnosed: 1993

Administration: IV

Background: I am currently studying to become a nurse and enjoy spending time with friends.

Patient: Cynthia

Born: 1952

Location: Irvington, NY

Diagnosed: 1992

Administration: IV

Background: I am a former dance instructor and enjoy spending time with my daughters and staying busy.

Patient: Beverly

Born: 1957

Location: Ann Arbor, MI

Diagnosed: 1996

Administration: SC

Background: I am a retired medical billing clerk. I enjoy gardening, reading, and spending time with my granddaughter.

Patient: Errin

Born: 1971

Location: Los Angeles, CA

Diagnosed: 2012

Administration: SC

Background: I work full time as a training coordinator for a mortgage company. I enjoy visiting with friends in my free time.

Patient: Evelyn

Born: 1941

Location: Fort Worth, TX

Diagnosed: 1999

Administration: IV

Background: I am a retired executive assistant in the maritime industry, and I enjoy watching movies and reading. I also speak Spanish.

Caregiver: Jane

Born: 1961

Location: Longwood, FL

Administration: SC

Background: I am a caregiver for my daughter who was diagnosed in 2010. I am a mother and wife and enjoy reading, crocheting, and cross-stitching.

Patient: Janet

Born: 1962

Location: Thomasville, NC

Diagnosed: 2003

Administration: IV

Background: I am a mother of three girls, and I enjoy reading and gardening.

Patient: Laurie

Born: 1976

Location: Blanchard, MI

Diagnosed: 2003

Administration: SC

Background: I work full time in sales, and I enjoy reading, scrapbooking, shopping, and spending time with my daughter.

Patient: Lora

Born: 1964

Location: Wilmington, OH

Diagnosed: 1999

Administration: IV

Background: I am a former billing manager assistant, and I enjoy spending time with my three grandchildren and playing on the computer.

Patient: Maria

Born: 1976

Location: Warren, OH

Diagnosed: 2004

Administration: SC

Background: I work full time as a dietician for a nursing home. I enjoy shopping, watching TV, and hanging out with friends.

Patient: Merle

Location: Grove City, PA

Diagnosed: 2002

Administration: IV

Background: I am a retired real estate broker and currently serve as a support group leader in my area. I enjoy reading and crocheting.

Patient: Ornah

Born: 1968

Location: Long Beach, CA

Diagnosed: 2008

Administration: IV

Background: I work full time as an office manager for a technology firm. I enjoy creating pottery and helping as the social coordinator for the performing arts high school program.

Patient: Perry

Born: 1960

Location: Fresno, CA

Diagnosed: 2009

Administration: SC

Background: I was formerly in the printing business. I enjoy sports, watching movies, spending time with friends, and car restoration.

Patient: Sally

Born: 1969

Location: Rome, GA

Diagnosed: 1990

Administration: IV

Background: I am a teacher at a middle school, and I enjoy going to the beach and attending concerts.

Patient: Sharon

Born: 1951

Location: Taylor, MI

Diagnosed: 2004

Administration: SC

Background: I enjoy playing the guitar and spending time with my grandson.

If you are interested in learning more about the PEER Network or would like to connect one-on-one with a Remodulin PEER Mentor, please contact us:

E-mail: info@peernetwork.net

Toll-free by phone: 1-866-505-7337

Fax: 1-877-733-7202

Mail: Remodulin PEER Mentors, PMB 227, 4111 E Madison St, Suite 2, Seattle, WA 98112-9944

Standard business hours are 8 AM to 5 PM (Pacific time) Monday through Friday. If you call and leave a message outside of normal operating hours, a representative will get back to you the next business day.

Available resources for PAH patients

Important Safety Information for Remodulin

Drug Interactions/Specific Populations

Indication for Remodulin

Remodulin is a prescription medication used in adults with pulmonary arterial hypertension (PAH; WHO Group 1), to diminish symptoms associated with exercise. PAH is high blood pressure in the arteries of your lungs. Remodulin was studied mainly in patients with NYHA Functional Class II-IV symptoms. Remodulin is delivered (infused) continuously using a pump connected to a small tube that is either placed under the skin (subcutaneously [SC]) or inserted into a vein in the upper chest (intravenously [IV]). Because there are risks associated with continuous IV infusion, such as serious blood stream infections, IV infusion should be reserved for people who cannot tolerate SC infusion or for those in whom the risks are considered acceptable.

In people with PAH who need to switch from Flolan® (epoprostenol sodium), Remodulin is approved to slow the worsening of symptoms. The risks and benefits of each drug should be carefully considered before switching.

Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects to the FDA at www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see the Full Prescribing Information for Remodulin.

For additional information, call Customer Service at 1-877-UNITHER (1-877-864-8437).

This information is provided for an informational purpose and is not intended as treatment advice. Patients should consult a healthcare professional for treatment advice.

Important Safety Information and Indication

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Important Safety Information for Remodulin

  • Continuous intravenous (IV) infusions of Remodulin are delivered using a tube placed in a central vein within the chest. This type of delivery is associated with the risk of blood stream infections and sepsis, which may be fatal. Therefore, continuous subcutaneous (SC) infusion delivered just beneath the skin is the preferred type of delivery.
  • You should not stop or greatly reduce your Remodulin dose without consulting your doctor, as this may cause your PAH symptoms to worsen.
  • Other medical conditions and medicines may affect your use of Remodulin by increasing the risk of side effects or decreasing the drug's effectiveness. It is important to tell your doctor about your medical conditions and any medicines you may be taking.
  • If you have liver or kidney problems, your ability to tolerate Remodulin may be affected.

Drug Interactions/Specific Populations

  • If you are taking gemfibrozil (for high cholesterol), rifampin (for infection), or other drugs that affect liver enzymes, your doctor may need to adjust your Remodulin dosage.
  • Remodulin acts by lowering your blood pressure. In some cases your blood pressure may become too low and cause other side effects. If you also take other drugs that lower your blood pressure, the risk is increased. You should discuss all of your symptoms with your doctor, including those associated with low blood pressure.
  • Because Remodulin can reduce the blood's ability to clot, it may increase your risk of bleeding, especially if you are taking anticoagulants (blood thinners).
  • If you are pregnant, breast-feeding, or planning to become pregnant, talk with your doctor about whether you should take Remodulin.
  • Side Effects: In clinical studies of SC infusion of Remodulin, most people experienced infusion site pain and infusion site reaction (redness and swelling). These symptoms were often severe and sometimes required treatment with narcotics or discontinuation of Remodulin. The IV infusion of Remodulin has been associated with the risk of blood stream infections, arm swelling, tingling sensations, bruising, and pain. Other common side effects seen with either SC or IV Remodulin were headache, diarrhea, jaw pain, nausea, vasodilatation (widening of the blood vessels), and edema (swelling).

Indication for Remodulin

Remodulin is a prescription medication used in adults with pulmonary arterial hypertension (PAH; WHO Group 1), to diminish symptoms associated with exercise. PAH is high blood pressure in the arteries of your lungs. Remodulin was studied mainly in patients with NYHA Functional Class II-IV symptoms. Remodulin is delivered (infused) continuously using a pump connected to a small tube that is either placed under the skin (subcutaneously [SC]) or inserted into a vein in the upper chest (intravenously [IV]). Because there are risks associated with continuous IV infusion, such as serious blood stream infections, IV infusion should be reserved for people who cannot tolerate SC infusion or for those in whom the risks are considered acceptable.

In people with PAH who need to switch from Flolan® (epoprostenol sodium), Remodulin is approved to slow the worsening of symptoms. The risks and benefits of each drug should be carefully considered before switching.

Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects to the FDA at www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see the Full Prescribing Information for Remodulin.

For additional information, call Customer Service at 1-877-UNITHER (1-877-864-8437).